Caregiver burden

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Caregiver burden is a collective term for the stresses associated with the care of the physically or mentally ill, usually in the context of family or other nonprofessional caregivers.

See also

• Distress In cancer caregiving
• Elder care
• Ethics of care
• Home care
• Homebound
• Respite care

Key texts

Papers

• Angermeyer, M.C., Bull, N., Bernert, S., Dietrich, S. & Kopf, A. (2006). Burnout of Caregivers: A Comparison between Partners of Psychiatric Patients and Nurses. Archives of Psychiatric Nursing, 20(4), 158-165.

Awad, A.G. & Voruganti, L.N.P. (2008). The Burden of Schizophrenia on Caregivers: A Review. Pharmacoeconomics, 26(2), 149-162

• Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on ‘Young Carers’ in the U.K., Australia, the USA and Sub-Saharan Africa. Global Social Policy, 7(1), 25-50.
• Caqueo-Urizar, A. & Gutierrez-Maldonado, J. (2006). Burden of care in families of patients with schizophrenia. Quality of Life Research, 15, 719-724.
• Chadda, R.K., Singh, T.B.& Ganguly, K.K. (2007). Caregiver burden and coping: A prospective study of relationship between burden and coping in caregivers of patients with schizophrenia and bipolar affective disorder. Social Psychiatry and Psychiatric Epidemiology, 42, 923-930.
• Cleary, M., Freeman, A., Hunt, G.E. & Walter, G. (2005). What patients and carers want to know: an exploration of information and resource needs in adult mental health services. Australian and New Zealand Journal of Psychiatry, 39, 507-513.
• Craig, T. & Bromet, E.J. (2004). Parents with psychosis. Annals of Clinical Psychiatry, 16, 35-39.
• Dyck, D.G., Short, R. & Vitaliano, P. P. (1999). Predictors of Burden and Infectious Illness in Schizophrenia *Caregivers. Psychosomatic Medicine, 61, 411-419.
• Fadden, G., Bebbington, P. and Kuipers, L (1987). The Burden of Care - the impact of functional psychiatric illness on the patients family. British Journal of Psychiatry, 150, 285-292.
• Grandón, P., Jenaro, C. & Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research, 158, 335-343.
• Hanzawa, S., Tanaka, G., Inadomi, H., Urata, M. & Ohta, Y. (2008). Burden and coping strategies in mothers of patients with schizophrenia in Japan. Psychiatry and Clinical Neurosciences, 62, 256-263.
• Hardcastle, M., Kennard, D., Grandison, S. & Fagin, L. (Eds.) (2007) Experiences of Mental Health In-patient Care: Narratives from service users, carers and professionals. London: Routledge.
• Huang, X-Y., Sun, F-K., Yen, W-J. & Fu, C-M. (2008). The coping experiences of carers who live with someone who has schizophrenia. Journal Clinical Nursing, 17, 817-826.
• Karp, D.A. & Tanarugsachock V. (2000). Mental Illness, Caregiving, and Emotion Management. Qualitative Health Research, 10(1), 6-25.
• Krupnik, Y. Pilling, S., Killaspy, H. & Dalton, J. (2005). A study of family contact with clients and staff of community mental health teams. Psychiatric Bulletin, 29, 174-176.
• Lai, A. (2008). First person account of schizophrenia: A carer’s perspective. Hong Kong Journal of Psychiatry, 18(1), 41-2.
• Lowyck, B., De Hert, M., Peeters, E., Gilis, P. & Peuskens, J. (2001). Can we identify the factors influencing the burden on family members of patients with schizophrenia? International Journal of Psychiatry in Clinical Practice, 5, 89-96.
• Magliano, L., Fadden, G., Economou, M., Held, T., Xavier, M. et al. (2000) Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED 1 study. Social Psychiatry and Psychiatric Epidemiology, 35, 109-115.
• Magliano, L., Fadden, G., Economou, M., Xavier, M., Held, T. et al (1998). Social and clinical factors influencing the choice of coping strategies in relatives of patients with schizophrenia: results of the BIOMED 1 study. Social Psychiatry and Psychiatric Epidemiology, 33,413-419.
• Magliano, L., Fadden, G., Fiorillo, A., Malangone, C., Sorrentino, D., Robinson, A. & Maj, M. (1999). Family burden and coping strategies in schizophrenia: are key relatives really different to other relatives? Acta Psychiatrica Scandinavica, 99, 10-15.
• Magliano, L., Fadden, G., Madianos, M., Caldas de Almeida, J-M., Held, T., Guarneri, M., Marasco, C., Tosini, P. & Maj, M. (1998). Burden on the families of patients with schizophrenia: results of the BIOMED 1 study. Social Psychiatry and Psychiatric Epidemiology, 33, 405-412.
• Mohr, W.K., Lafuze, J.E. & Mohr B.D. (2000). Opening Caregiver Minds: National Alliance for the Mentally Ill’s (NAMI) Provider Education Program. Archives of Psychiatric Nursing, 14(5), 235-243
• Moniz-Cook, E., Elston, C., Gardiner, E., Agar, S., Silver, M., Win, T. & Wang, M. (2008). Can training community mental health nurses to support family carers reduce behavioural problems in dementia? An exploratory pragmatic randomised controlled trial. International Journal of Geriatric Psychiatry, 23(2), 185-191.
• Palmer, B.W., Heaton, S.C. & Jeste, D.V. (1999). Older patients with schizophrenia: Challenges in the coming decades. Psychiatric Services, 50, 1178-1183.
• Parabiaghi, A., Lasalvia, A., Bonetto, C., Cristofalo, D., Marrella, G., Tansella, M. & Ruggeri, M. (2007). Predictors of changes in caregiving burden in people with

schizophrenia: a 3-year follow-up study in a community mental health service. Acta Psychiatrica Scandinavica, 116 (Suppl. 437), 66-76.

• Pearson, V.(2008) Who cares for the caregivers? Families and schizophrenia in Hong Kong. Hong Kong Journal of Psychiatry, 18(1), 3-5.
• Perlick, D.A., Rosenheck, R.A., Kaczynski, R., Swartz, M.S., Canive, J.M., Lieberman, J.A. (2006). Components and correlates of family burden in schizophrenia. Psychiatric Services, 57, 1117-1125.
• Reed, S. (2008). First-episode psychosis: A literature review. International Journal of Mental Health Nursing, 17, 85-91.
• Reinares, M., Vieta, E., Colom, F., Martínez-Arán, A., Torrent, C., Comes, M., Goikolea, J.M., Benabarre, A., Daban, C. & Sánchez-Moreno (2006). Journal of Affective Disorders, 94, 157-163.
• Roick, C., Heider, D., Bebbington, P.E., Angermeyer, M.C., Azorin, J.-M., Brugha, T.S., Kilian, R., Johnson, S., *Toumi, M. & Kornfeld, A. (2007). Burden on caregivers of people with schizophrenia: comparison between Germany and Britain. British Journal of Psychiatry, 190, 333-338.
• Rose, L.E., Mallinson, K. & Gerson, L.D. (2006). Mastery, burden and areas of concern among family caregivers of mentally ill persons. Archives of Psychiatric Nursing, 20, 41-51.
• Sefasi, A. Crumlish, N., Samalani, P., Kinsella, A., O’Callaghan, E. & Chilale, H. (2008). A little knowledge: Caregiver burden in schizophrenia in Malawi. Social Psychiatry and Psychiatric Epidemiology, 43, 160-164.
• Sin, J. & Moone, N. (2008). Siblings of Individuals with First-Episode Psychosis: Understanding Their Experiences and Needs. Journal of Psychosocial Nursing, 46(6), 33-40.
• Wancata, J., Krautgartner, M., Berner, J., Scumaci, S., Freidl, M., Alexandrowicz, R. & Rittmannsberger, H. (2006). The “Carers’ needs assessment for Schizophrenia”: An instrument to assess the needs of relatives caring for schizophrenia patients. Social Psychiatry and Psychiatric Epidemiology, 41, 221-229.
• Yeh, L-L., Hwu, H-G., Chen, C-H., Chen, C-H. & Wu, A.C.C. (2008). Factors Related to Perceived Needs of Primary Caregivers of Patients with Schizophrenia. Journal of the Formosan Medical Association, 107(8), 644-652

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